{"id":12811,"date":"2022-12-21T08:59:13","date_gmt":"2022-12-21T08:59:13","guid":{"rendered":"https:\/\/thepublicationplan.com\/?p=12811"},"modified":"2022-12-21T08:59:14","modified_gmt":"2022-12-21T08:59:14","slug":"four-factors-that-influence-patient-and-public-involvement-in-health-research","status":"publish","type":"post","link":"https:\/\/thepublicationplan.com\/2022\/12\/21\/four-factors-that-influence-patient-and-public-involvement-in-health-research\/","title":{"rendered":"Four factors that influence patient and public involvement in health research"},"content":{"rendered":"<hr \/>\n<p><strong>KEY TAKEAWAYS<\/strong><\/p>\n<ul>\n<li>In an analysis of 3,000 health research articles, only around 1 in 5 reported patient and public involvement.<\/li>\n<li>The inclusion of patient and public involvement varied depending on location, research methods and topic, and the source of funding.<\/li>\n<\/ul>\n<hr \/>\n<p><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"12815\" data-permalink=\"https:\/\/thepublicationplan.com\/2022\/12\/21\/four-factors-that-influence-patient-and-public-involvement-in-health-research\/diverse-group-of-participants-having-breakout-session-during-a-leadership-conference\/\" data-orig-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/12\/Four-factors-for-PPI.jpg?fit=696%2C501&amp;ssl=1\" data-orig-size=\"696,501\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;Getty Images\/iStockphoto&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;Diverse Group Of Young Participants Having Breakout Session During A Leadership Conference. Isolated On Color Background.&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;Diverse Group Of Participants Having Breakout Session During A Leadership Conference.&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"\" data-image-description=\"\" data-image-caption=\"\" data-medium-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/12\/Four-factors-for-PPI.jpg?fit=300%2C216&amp;ssl=1\" data-large-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/12\/Four-factors-for-PPI.jpg?fit=696%2C501&amp;ssl=1\" class=\"aligncenter size-full wp-image-12815\" src=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/12\/Four-factors-for-PPI.jpg?resize=696%2C501&#038;ssl=1\" alt=\"\" width=\"696\" height=\"501\" srcset=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/12\/Four-factors-for-PPI.jpg?w=696&amp;ssl=1 696w, https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/12\/Four-factors-for-PPI.jpg?resize=300%2C216&amp;ssl=1 300w\" sizes=\"auto, (max-width: 696px) 100vw, 696px\" \/><\/p>\n<p>A recent <a href=\"https:\/\/bmjopen.bmj.com\/content\/12\/5\/e063356?rss=1\" target=\"_blank\" rel=\"noopener\">study<\/a> led by Dr Iain Lang found that despite efforts to increase <a href=\"https:\/\/thepublicationplan.com\/2022\/11\/08\/representing-the-patient-voice-in-rare-diseases-an-interview-with-patient-advocate-dakota-fisher-vance\/\" target=\"_blank\" rel=\"noopener\">patient and public involvement<\/a> (PPI) in health research, such as stipulations by state and charitable funding bodies that PPI should be a part of health research, its inclusion is still uncommon, and the extent of its inclusion varies depending on several factors.<\/p>\n<p>In a cross-sectional analysis of 3,000 original research articles published in <a href=\"https:\/\/bmjopen.bmj.com\/\" target=\"_blank\" rel=\"noopener\"><em>BMJ Open<\/em><\/a> between 1 January 2020 and 31 December 2020, approximately 21% included PPI. The study also looked at whether the inclusion of PPI differed depending on research location, method, topic, and funding source, and found large variation across these categories:<\/p>\n<ul>\n<li><strong>by location<\/strong> (the country of the primary affiliation of the first author): 45% of research based in the UK vs 3% of research in China included PPI<\/li>\n<li><strong>by method<\/strong> (based on a categorisation of words in the title): 39% of articles with mixed methods vs 5% of simulation articles included PPI<\/li>\n<li><strong>by research topic<\/strong> (based on the section of the journal to which the article was assigned): 37% of articles on mental health vs 3% of articles on medical education and training included PPI<\/li>\n<li><strong style=\"font-size: revert;\">by funding source<\/strong><span style=\"font-size: revert;\"> (taken from the funding section of each article): 57% of articles funded by the National Institute for Health and Care Research (NIHR) vs 3% of articles funded by a Chinese funding body included PPI.<\/span><\/li>\n<\/ul>\n<p>Further studies are needed to evaluate effects of attitudes, policies, or beliefs at different levels within research organisations on patient and public engagement.<\/p>\n<blockquote>\n<p style=\"text-align: center;\">\u201cWe will need different methods to study such influences on how and why PPI in health research occurs\u2014and why it does not.\u201d<\/p>\n<\/blockquote>\n<p>However, the authors believe the considerable differences identified by their study may indicate ways to increase PPI inclusion in research by targeting the areas with the lowest patient and public involvement.<\/p>\n<p>\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2013<\/p>\n<p><a href=\"https:\/\/www.aspire-scientific.com\/\" target=\"_blank\" rel=\"noopener\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"10847\" data-permalink=\"https:\/\/thepublicationplan.com\/2022\/02\/22\/can-we-make-peer-review-more-efficient\/byline_joanna-nikitorowicz-buniak\/\" data-orig-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/02\/Byline_Joanna-Nikitorowicz-Buniak.png?fit=618%2C75&amp;ssl=1\" data-orig-size=\"618,75\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"\" data-image-description=\"\" data-image-caption=\"\" data-medium-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/02\/Byline_Joanna-Nikitorowicz-Buniak.png?fit=300%2C36&amp;ssl=1\" data-large-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/02\/Byline_Joanna-Nikitorowicz-Buniak.png?fit=618%2C75&amp;ssl=1\" class=\"aligncenter wp-image-10847 size-full\" src=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/02\/Byline_Joanna-Nikitorowicz-Buniak.png?resize=618%2C75&#038;ssl=1\" alt=\"\" width=\"618\" height=\"75\" srcset=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/02\/Byline_Joanna-Nikitorowicz-Buniak.png?w=618&amp;ssl=1 618w, https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2022\/02\/Byline_Joanna-Nikitorowicz-Buniak.png?resize=300%2C36&amp;ssl=1 300w\" sizes=\"auto, (max-width: 618px) 100vw, 618px\" \/><\/a><\/p>\n<div id=\"totalpoll\" class=\"totalpoll-wrapper totalpoll-uid-2e21fe0b6d537996d47c3d4b16d0e3cc is-ltr is-screen-vote\" totalpoll=\"12809\" totalpoll-uid=\"2e21fe0b6d537996d47c3d4b16d0e3cc\" totalpoll-screen=\"vote\" totalpoll-ajax-url=\"https:\/\/thepublicationplan.com\/wp-admin\/admin-ajax.php?action=totalpoll&totalpoll%5BpollId%5D=12809&totalpoll%5Baction%5D=view&totalpoll%5Bscreen%5D=vote\"><script type=\"text\/totalpoll-config\" totalpoll-config=\"12809\">{\"ajaxEndpoint\":\"https:\\\/\\\/thepublicationplan.com\\\/wp-admin\\\/admin-ajax.php?action=totalpoll\",\"behaviours\":{\"ajax\":true,\"scrollUp\":true,\"async\":false},\"effects\":{\"transition\":\"fade\",\"duration\":\"500\"},\"i18n\":{\"Previous\":\"Previous\",\"Next\":\"Next\",\"of\":\"of\",\"Something went wrong! Please try again.\":\"Something went wrong! Please try again.\"}}<\/script><link rel=\"stylesheet\" id=\"totalpoll-poll-2e21fe0b6d537996d47c3d4b16d0e3cc-css\"  href=\"https:\/\/thepublicationplan.com\/wp-content\/cache\/totalpoll\/css\/2e21fe0b6d537996d47c3d4b16d0e3cc.css\" type=\"text\/css\" media=\"all\" \/><div id=\"totalpoll-poll-12809\" class=\"totalpoll-container\"><form action=\"\" enctype=\"multipart\/form-data\" class=\"totalpoll-form\" method=\"POST\" novalidate=\"novalidate\"><div style=\"visibility: hidden; position: absolute; width: 0px; height: 0px;\">\r\n    <svg id=\"totalpoll-check-icon\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\">\r\n        <path d=\"M0,0H24V24H0Z\" fill=\"none\"\/>\r\n        <path d=\"M9,15.1999l-4.2-4.2L2.3999,13.4,9,20.0001,22.0001,7,19.6,4.5999Z\"\/>\r\n    <\/svg>\r\n<\/div>\r\n    <div class=\"totalpoll-questions\">\r\n\t\t<div class=\"totalpoll-question\"\r\n     totalpoll-min-selection=\"1\"\r\n     totalpoll-max-selection=\"1\" >\r\n    <div class=\"totalpoll-question-container\">\r\n        <div class=\"totalpoll-question-content\" >\r\n\t\t\t<p>What do you think \u2013 should funding bodies include patient and public involvement as a requirement for research funding?<\/p>\n        <\/div>\r\n\r\n        <div class=\"totalpoll-question-choices\">\r\n\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"choice-ca103439-8ed8-45c2-9146-940f6419eade-selector\" tabindex=\"0\"\r\n       class=\"totalpoll-question-choices-item totalpoll-question-choices-item-type-text \" >\r\n    <div class=\"totalpoll-question-choices-item-container\">\r\n        \r\n\t\t        \r\n        <div class=\"totalpoll-question-choices-item-control\">\r\n            <div class=\"totalpoll-question-choices-item-selector totalpoll-question-choices-item-selector-single\">\r\n\t\t\t\t<input type=\"radio\" id=\"choice-ca103439-8ed8-45c2-9146-940f6419eade-selector\" name=\"totalpoll[choices][a70e7d2c-38ae-421a-a39e-0826358fbc6b][]\" value=\"ca103439-8ed8-45c2-9146-940f6419eade\">                <div class=\"totalpoll-question-choices-item-selector-box\">\r\n                    <svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\">\r\n                        <use xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"#totalpoll-check-icon\"><\/use>\r\n                    <\/svg>\r\n                <\/div>\r\n            <\/div>\r\n            <div class=\"totalpoll-question-choices-item-label\">\r\n                <span >Yes<\/span>\r\n            <\/div>\r\n        <\/div>\r\n    <\/div>\r\n<\/label>\r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"choice-e147a42f-b846-43a8-8b53-a1995c7e0608-selector\" tabindex=\"0\"\r\n       class=\"totalpoll-question-choices-item totalpoll-question-choices-item-type-text \" >\r\n    <div class=\"totalpoll-question-choices-item-container\">\r\n        \r\n\t\t        \r\n        <div class=\"totalpoll-question-choices-item-control\">\r\n            <div class=\"totalpoll-question-choices-item-selector totalpoll-question-choices-item-selector-single\">\r\n\t\t\t\t<input type=\"radio\" id=\"choice-e147a42f-b846-43a8-8b53-a1995c7e0608-selector\" name=\"totalpoll[choices][a70e7d2c-38ae-421a-a39e-0826358fbc6b][]\" value=\"e147a42f-b846-43a8-8b53-a1995c7e0608\">                <div class=\"totalpoll-question-choices-item-selector-box\">\r\n                    <svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\">\r\n                        <use xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"#totalpoll-check-icon\"><\/use>\r\n                    <\/svg>\r\n                <\/div>\r\n            <\/div>\r\n            <div class=\"totalpoll-question-choices-item-label\">\r\n                <span >No<\/span>\r\n            <\/div>\r\n        <\/div>\r\n    <\/div>\r\n<\/label>\r\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<label for=\"choice-eb0fe6a2-d8a2-49cc-9ef9-92e6559be22b-selector\" tabindex=\"0\"\r\n       class=\"totalpoll-question-choices-item totalpoll-question-choices-item-type-text \" >\r\n    <div class=\"totalpoll-question-choices-item-container\">\r\n        \r\n\t\t        \r\n        <div class=\"totalpoll-question-choices-item-control\">\r\n            <div class=\"totalpoll-question-choices-item-selector totalpoll-question-choices-item-selector-single\">\r\n\t\t\t\t<input type=\"radio\" id=\"choice-eb0fe6a2-d8a2-49cc-9ef9-92e6559be22b-selector\" name=\"totalpoll[choices][a70e7d2c-38ae-421a-a39e-0826358fbc6b][]\" value=\"eb0fe6a2-d8a2-49cc-9ef9-92e6559be22b\">                <div class=\"totalpoll-question-choices-item-selector-box\">\r\n                    <svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"24\" height=\"24\" viewBox=\"0 0 24 24\">\r\n                        <use xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"#totalpoll-check-icon\"><\/use>\r\n                    <\/svg>\r\n                <\/div>\r\n            <\/div>\r\n            <div class=\"totalpoll-question-choices-item-label\">\r\n                <span >Not sure<\/span>\r\n            <\/div>\r\n        <\/div>\r\n    <\/div>\r\n<\/label>\r\n\t\t\t\t\t\t\t            \r\n\t\t\t            \r\n        <\/div>\r\n    <\/div>\r\n<\/div>\r\n    <\/div>\r\n<div class=\"totalpoll-form-hidden-fields\">\r\n\t<div class=\"totalpoll-form-page\"><div class=\"totalpoll-form-field-hidden\"><div class=\"totalpoll-form-field totalpoll-form-field-type-hidden totalpoll-column-full\"><div class=\"totalpoll-form-field-wrapper\"><input type=\"hidden\" name=\"totalpoll[screen]\" value=\"vote\" class=\"totalpoll-form-field-input\"><div class=\"totalpoll-form-field-errors\"><\/div><\/div><\/div><\/div><div class=\"totalpoll-form-field-hidden\"><div class=\"totalpoll-form-field totalpoll-form-field-type-hidden totalpoll-column-full\"><div class=\"totalpoll-form-field-wrapper\"><input type=\"hidden\" name=\"totalpoll[pollId]\" value=\"12809\" class=\"totalpoll-form-field-input\"><div class=\"totalpoll-form-field-errors\"><\/div><\/div><\/div><\/div><div class=\"totalpoll-form-field-hidden\"><div class=\"totalpoll-form-field totalpoll-form-field-type-hidden totalpoll-column-full\"><div class=\"totalpoll-form-field-wrapper\"><input type=\"hidden\" name=\"totalpoll[action]\" value=\"\" class=\"totalpoll-form-field-input\"><div class=\"totalpoll-form-field-errors\"><\/div><\/div><\/div><\/div><\/div><\/div>\r\n<div class=\"totalpoll-buttons\">\r\n\t<button type=\"submit\" name=\"totalpoll[action]\" value=\"results\" class=\"totalpoll-button totalpoll-buttons-results\">Results<\/button><button type=\"submit\" name=\"totalpoll[action]\" value=\"vote\" class=\"totalpoll-button totalpoll-button-primary totalpoll-buttons-vote\">Vote<\/button><\/div>\r\n<\/form><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>Find out the factors that impact on the likelihood of patient and public involvement in health research.<\/p>\n","protected":false},"author":1,"featured_media":12815,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"Find out the factors that impact on the likelihood of patient and public involvement in health research.","jetpack_seo_html_title":"Four factors that influence patient and public involvement in health research","jetpack_seo_noindex":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"Four factors that influence patient and public involvement in health research @IainALang @BMJ_Open #PatientInvolvement #PubPlan #MedComms #ISMPP 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