{"id":10138,"date":"2021-10-21T10:35:55","date_gmt":"2021-10-21T10:35:55","guid":{"rendered":"https:\/\/thepublicationplan.com\/?p=10138"},"modified":"2021-10-21T10:58:54","modified_gmt":"2021-10-21T10:58:54","slug":"video-involving-the-patient-from-protocol-to-publication-in-real-world-evidence-studies","status":"publish","type":"post","link":"https:\/\/thepublicationplan.com\/2021\/10\/21\/video-involving-the-patient-from-protocol-to-publication-in-real-world-evidence-studies\/","title":{"rendered":"[VIDEO] Involving the patient from protocol to publication in real-world evidence studies"},"content":{"rendered":"<p>In this webinar recorded in September 2021, a panel including Emma Bagshaw, Mark Larkin and Sam Llewellyn from Vitaccess and Fulvio Baggi, Director of The European Myasthenia Gravis Association, discussed the lifecycle of creating collaborative digital patient registries and taking them through to publications. The discussion was based on the MyRealWorld Myasthenia Gravis study, which was co-created with patient advocacy groups and key opinion leaders from 9 countries.<\/p>\n<p><div class=\"jetpack-video-wrapper\"><span class=\"embed-youtube\" style=\"text-align:center; display: block;\"><iframe loading=\"lazy\" class=\"youtube-player\" width=\"1360\" height=\"765\" src=\"https:\/\/www.youtube.com\/embed\/5RQtw9Qk_hs?version=3&#038;rel=1&#038;showsearch=0&#038;showinfo=1&#038;iv_load_policy=1&#038;fs=1&#038;hl=en-US&#038;autohide=2&#038;wmode=transparent\" allowfullscreen=\"true\" style=\"border:0;\" sandbox=\"allow-scripts allow-same-origin allow-popups allow-presentation allow-popups-to-escape-sandbox\"><\/iframe><\/span><\/div><\/p>\n<p>Recorded 22 September 2021 as a MedComms Networking webinar. Produced by NetworkPharma.tv<\/p>\n<p>\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2014\u2013<\/p>\n<p><a href=\"https:\/\/www.aspire-scientific.com\/\" target=\"_blank\" rel=\"noopener\"><img data-recalc-dims=\"1\" loading=\"lazy\" decoding=\"async\" data-attachment-id=\"9342\" data-permalink=\"https:\/\/thepublicationplan.com\/2021\/07\/09\/video-extending-the-reach-of-medical-publications\/byline_pubplan_2-2\/\" data-orig-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2021\/06\/Byline_PubPlan_2-1.png?fit=618%2C75&amp;ssl=1\" data-orig-size=\"618,75\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;0&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;0&quot;}\" data-image-title=\"Byline_PubPlan_2\" data-image-description=\"\" data-image-caption=\"\" data-medium-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2021\/06\/Byline_PubPlan_2-1.png?fit=300%2C36&amp;ssl=1\" data-large-file=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2021\/06\/Byline_PubPlan_2-1.png?fit=618%2C75&amp;ssl=1\" class=\"alignnone wp-image-9342 size-full\" src=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2021\/06\/Byline_PubPlan_2-1.png?resize=618%2C75&#038;ssl=1\" alt=\"\" width=\"618\" height=\"75\" srcset=\"https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2021\/06\/Byline_PubPlan_2-1.png?w=618&amp;ssl=1 618w, https:\/\/i0.wp.com\/thepublicationplan.com\/wp-content\/uploads\/2021\/06\/Byline_PubPlan_2-1.png?resize=300%2C36&amp;ssl=1 300w\" sizes=\"auto, (max-width: 618px) 100vw, 618px\" \/><\/a><\/p>\n<hr \/>\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Emma Bagshaw, Mark Larkin and Sam Llewellyn from Vitaccess and Fulvio Baggi, Director of The European Myasthenia Gravis Association discuss the lifecycle of creating collaborative digital patient registries and taking them through to the publications.<\/p>\n","protected":false},"author":1,"featured_media":10146,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"advanced_seo_description":"The panel discuss the lifecycle of creating collaborative digital patient registries and taking them through to the 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